CATSS Research Participation Registry

As part of its outreach mission, CATSS occasionally receives names and contact information of individuals who are interested in participating in sensory research. We wished to expand our capability for interfacing with the public in this way. After receiving approval from the University of Minnesota IRB, we pursued development of an online tool that could provide a public platform for individuals to sign up to be contacted about research studies they might be eligible for and could be used to enter individual data into a database.

With the help of LATIS, a Qualtrics survey was developed as an online sign-up form for entering basic demographic and contact information, age, and self-reported sensory status. Initial prototype forms were sent to several individuals with low vision and hearing loss, to determine design accessibility and functionality. This process led to some refinements and ultimately to the final form, which can be accessed from the CATSS web site. The data entered into the form populates a database kept in a secure Box.com folder.

Contact Liz Anderson, CATSS Project Manager ([email protected]), for more information.

Information for inclusion in IRB apps for researchers intending to use database for recruiting:
The Center for Applied and Translational Sensory Science (CATSS) maintains a database on a secure server that contains names, contact information, and self-reported sensory status of individuals who have indicated an interest in (and given permission for) being contacted about research studies in which they may be eligible to participate. This research subject registry can be accessed only by UMN investigators who have received IRB approval for their study, and access is facilitated by CATSS professional staff.